One platform.
Every doctor's own registry.
Rx Registry Hub runs the Rare Metabolic Bone Disease Registry and the Osteoporosis Registry — longitudinal clinical research records for treating physicians. Built for doctors, not patients: every doctor's registry and data stay completely private to them.
"Most of these diagnoses, a clinician sees once. The registry is what lets them see it a hundred times."
Rare and chronic conditions don't behave like common ones. Any single hospital might see a handful of cases a year of a given rare bone disease, and perhaps none at all of a given skeletal dysplasia. That scarcity is exactly what makes them hard to diagnose quickly, hard to treat consistently, and nearly impossible to study without pooling cases across sites.
Rx Registry Hub exists to close that gap — one registry per condition, each doctor's own patients and structure kept private to them. A rare presentation stops being a one-off mystery and starts contributing to a shared, growing body of clinical experience, without ever exposing one doctor's data to another.
Built for doctors running clinical research
This is a clinical research tool for treating physicians and their research teams — not a patient portal. Patients never log in; their doctor records their data on their behalf.
Treating clinicians
Enrol a patient in minutes, then track their diagnosis, visits and outcomes in one structured record instead of a personal spreadsheet.
Research teams
Structured, longitudinal data for conditions too rare to power a single-centre study — de-identified and organised for real analysis, not a spreadsheet.
Your own registry, kept private
Every doctor's registry and patient data is isolated to them alone. No other doctor on this platform can see your patients, your records, or your registry's structure — ever.
Built with patient privacy as the default
Beyond keeping each doctor's registry private to them, the platform controls exactly what staff can see and keeps a record of who accessed what.
Access scoped per registry
A doctor grants data-entry and viewer staff access to specific registries only — never the full patient base by default.
Identifiers masked for staff
Patient name, phone number, and Aadhaar number are partially masked for data-entry and viewer roles — full detail stays visible only to the registry owner.
ICMR-aligned digital consent
Informed consent follows ICMR's digital consent guidance — a versioned consent form per registry, with every patient's Given/Withdrawn status and who obtained it recorded as a permanent event log.
Everything a registry needs, built in
Beyond privacy and access control, the platform handles the day-to-day work of running a registry.
Build any registry, no code
Sections, field groups and fields are fully configurable per registry — the form matches the condition, not the other way around.
Reports and scans, attached
Attach documents and files directly to the section they belong to, so a patient's full record stays in one place across every visit.
Export to Excel, safely
Pull registry data out as a spreadsheet at any time — masked exactly as that role would see it on screen, never more.
A dashboard that flags gaps
Enrolment counts and outstanding items — like patients still missing a recorded consent — surface on login, not buried in a spreadsheet.
Every visit, longitudinally linked
A patient's baseline and every follow-up visit live in the same structured record, so the full history stays queryable, not scattered.
Light mode, dark mode
Both the registry app and this site adapt to your system theme, or switch manually — built for long documentation sessions either way.
One registry engine, ready for every department
Rx Registry Hub's infrastructure isn't limited to bone disease. The same structured, longitudinal tracking model adapts to any specialty that needs a real record instead of scattered charts.
High-impact diseases & conditions
Cancer (Oncology)
Tracks tumor staging, genetic mutations, and long-term survival rates.
Rare Diseases
Documents the natural history of conditions like Huntington's disease or cystic fibrosis.
Cardiovascular Disease
Monitors patients with coronary artery disease, heart failure, or heart valves.
Diabetes (Endocrine)
Evaluates long-term A1C control, diabetic retinopathy, and kidney complications.
Autoimmune Disorders
Tracks flares and medication efficacy for Lupus or Rheumatoid Arthritis.
Neurological Conditions
Observes progression and treatment responses in Multiple Sclerosis and Parkinson's.
Medical departments that benefit most
Orthopedics
Tracks joint replacement durability (e.g., hip and knee arthroplasty registries).
Cardiology & Cardiothoracic Surgery
Monitors pacemaker placements, stent outcomes, and bypass surgeries.
Pediatrics
Follows congenital anomalies, developmental milestones, and neonatal intensive care outcomes.
Obstetrics & Gynecology
Tracks high-risk pregnancy outcomes, preeclampsia trends, and fertility treatments.
Infectious Disease
Monitors chronic viral infections like HIV/AIDS and Hepatitis C, or novel pathogens.
Ophthalmology
Follows macular degeneration progression and corneal transplant success rates.
These are the kinds of registries the same platform can support — today's live data covers the Rare Metabolic Bone Disease Registry and the Osteoporosis Registry. Interested in standing up a registry for another department? Get in touch.
From first contact to a lasting record
Reach out
A treating doctor or research team sends basic details through the contact form below.
Clinical review
The registry team confirms the diagnosis fits and reaches out to arrange enrolment.
Enrolment
The patient's history and baseline details are recorded in a dedicated, structured record.
Ongoing follow-up
Each subsequent visit adds to the same record — building a real longitudinal picture over time.
Reach the registry team
For treating doctors and research teams — to enrol a patient, refer a case, or set up your own registry.